Turning Experience into Empowerment

Tammy Carr

Expert by Experience

August 14, 2026

Written by PII 2026 Summer Intern, Jonya Smith, MSW(c)

‍One of the most rewarding parts of my internship with the Patient Insight Institute (PII) has been learning from patients whose lived experiences can inspire meaningful change. Recently, I had the privilege of interviewing Tammy Carr, a member of the Patient Advocate Foundation (PAF) Experts by Experience (ExE).

As Tammy reflected on her cancer journey, one thing became clear—her experience is no longer just about surviving cancer, but about helping others navigate it. Through her role as an ExE, Tammy has been able to turn her lived experience into an opportunity to empower others by sharing knowledge, resources, and lessons she has gained along the way.

When I asked Tammy about her experience with PAF, she smiled and simply described it as "wonderful." She shared that the organization has given her "a lot of knowledge to help others." That knowledge served her and Tammy now helps members of her cancer support group connect with financial assistance and various other resources they may not have known existed. For Tammy, sharing this information is a way of making sure others have access to tools and resources that can help them better navigate their own healthcare experiences. Hearing her speak, it was evident that advocacy had become her way of giving back.

Tammy also explained how becoming an ExE member transformed her perspective and “has helped me to see both sides of healthcare as an advocate and patient,". She spoke passionately about empowering patients to ask questions, seek second opinions, and advocate for the care they deserve. She also suggested that organizations continue finding ways to support patients beyond treatment, mentioning ideas like holiday gift cards and care baskets that can provide comfort during challenging times.

As our conversation continued, Tammy became candid about the realities many cancer patients face. She explained that people often struggle with "insurance issues, finances, medication costs, depression, treatment costs, and transportation." Reflecting on her own experience, she shared one of the most difficult moments of her journey: "I was turned away at the doctor's office and treatment due to the fact I had no money." This was a powerful reminder that financial hardship can be a barrier to receiving lifesaving care.

Despite those challenges, Tammy found strength through organizations like Elder Options, Veteran Affairs, and her fellow cancer survivors. One lesson stayed with her throughout her journey: "Never be afraid to use your voice. You know yourself and your body better than anyone else." After changing to a physician who truly listened, she discovered the confidence to advocate for herself and now encourages others to do the same.

Interviewing Tammy Carr reminded me that the most meaningful improvements in healthcare begin by listening to patients. Her story is one of resilience, compassion, and hope, demonstrating that even in the face of adversity, one voice has the power to make a difference in the lives of many.