Providing a thoughtful space for patients and community members to share their insights and experiences with health care researchers and program developers as they start new initiatives.

Learn More

About the Board

Organized by the Massachusetts Coalition for Serious Illness Care in partnership with the Patient Advocate Foundation (PAF), the goal of the Board is to ensure that our health care systems are investing in research and programs that best serve the needs of communities across Massachusetts. This is especially important for communities that are underinvested in and underrepresented – those often with the highest needs, yet least likely to have their voices heard. The Board will focus on reviewing research and programs about people with complex or chronic illnesses and conditions. Board members will bring their own lived experience as patients or caregivers as well as the broader perspectives of the communities they are closest to, either in their personal lives or because of where they live and work.

Meet our Board Members

  • Rosemay Arthur

  • Sebra Barcuis

  • Hana Asazuma-Cheng

  • Hilary Deignan

  • Nataria English

  • Barry Mullen

  • Sidney Murray II

  • Ardell Otten

  • Leidy Pimentel

  • Joanne Suarez

Let’s Work Together