https://www.patientinsightinstitute.org/papersandpublications daily 0.75 2026-05-05 https://www.patientinsightinstitute.org/papersandpublications/fuehwx5p1wap5louu3ja08pgkghkhm monthly 0.5 2026-05-05 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/06016a5a-313d-4c13-8408-2b6c9fb7f539/Clinical+Trials+Brief Papers and Publications - Patient Understanding and Barriers to Clinical Trial Participation - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/healthcareintransition monthly 0.5 2026-03-13 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/e011d12f-b4c2-4120-891f-ec4cdaced6d9/Page+Drafts+%2814%29.png Papers and Publications - Patient & Caregiver Voices in Changing Coverage Landscape - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/caregiverneedsnavigation monthly 0.5 2026-03-13 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/60f4cac7-0390-49d8-9a3c-9f0bfdab6e17/Choosing+the+Right+Setting+Exploring+Care+Options+for+Metastatic+Breast+Cancer+and+Their+Impact+%282%29.png Papers and Publications - Needs Navigation for Caregivers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/conversationtocare monthly 0.5 2025-09-05 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/9cef0dbe-27a6-4ac3-b222-b87bd2e06950/convotocarecover.png Papers and Publications - Social Needs in Healthcare Settings - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/screeningandnavigationservices monthly 0.5 2025-09-05 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/b4df1eb1-fd11-41c4-b8b7-0a4dda27e705/cover+nav.png Papers and Publications - Social Needs Screening and Navigation Services in Serious Illness Care - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/readinessmeetsreality monthly 0.5 2025-09-05 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/a697f38f-2eb3-45b3-ad11-327804e4f8c7/readinesscover.png Papers and Publications - Trust, Disclosure, and Action in Social Needs Screening - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/mbccarechoice monthly 0.5 2026-01-15 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/881e6e06-0d1c-4014-b2c3-6d2ccc49df6d/Lilly+Cover+Smaller.png Papers and Publications - Care Options for Metastatic Breast Cancer Patients - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/medicaredatabrief25 monthly 0.5 2025-08-06 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/6a56c649-054b-4a64-9ba1-2189742aa49e/Medicare+Survey+2025 Papers and Publications - Financial Burden & Treatment Disruption for Medicare Patients - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/providerinsightsahip monthly 0.5 2025-07-28 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/9287ec0e-3482-4358-a92b-b53db10e5cf5/Screenshot+2025-05-05+141327.png Papers and Publications - Patient Preferences: Insights for Providers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/patientsinsights monthly 0.5 2025-05-05 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/e22e24f6-9137-4f2a-b804-04ea9b895b02/Screenshot+2025-05-05+135725.png Papers and Publications - Patient Preferences: Insights for Patients & Caregivers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/payors monthly 0.5 2025-05-05 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/6ccb6f1d-0293-4e2d-940e-ac9228fd6c96/Screenshot+2025-05-05+134137.png Papers and Publications - Patient Preferences: Insights for Payors - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/returntocancercare monthly 0.5 2025-05-05 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/e9274fb5-4caa-4c92-93ae-0da605e46909/Screenshot+2025-05-05+123439.png Papers and Publications - Cancer Care After COVID-19 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/dstspring22 monthly 0.5 2025-05-05 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/1fbb9745-acc2-4631-bea5-630db8e8cef5/DST+Report.jpg Papers and Publications - Decision Support Tools for Patient-Centered Care - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/stateofpatient24 monthly 0.5 2025-03-18 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/919dfc6c-cac1-483c-ae50-3260c75bdb71/Screenshot+2025-01-23+131923.png Papers and Publications - State of the Patient 2024 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/aihealth monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/92a737ec-1fa5-48df-bf17-f43b7118e67d/AI+%26+Health+2-1.png Papers and Publications - Artificial Intelligence (AI) in Healthcare - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/healthliteracy monthly 0.5 2025-01-13 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/8e90bb62-1657-4c45-8d7d-bdc7df8c3096/Health+Literacy+%26+Health+Insurance+Literacy-1.png Papers and Publications - Health Literacy & Health Insurance Literacy - Make it stand out Click on image above to read full white paper. https://www.patientinsightinstitute.org/papersandpublications/patientpreferences monthly 0.5 2026-01-23 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/42728d18-b635-45be-a88e-7d838750db77/Patient+Preferences+White+Paper+%281%29.jpg Papers and Publications - Patient Preferences on Provider and Environmental Factors in Care - Make it stand out Click on image above to read full white paper. https://www.patientinsightinstitute.org/papersandpublications/irawhitepaper monthly 0.5 2024-09-20 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/5ddbf943-3d7a-4c42-9481-2d27425e449f/IRA+White+Paper+Cover+%281%29.png Papers and Publications - Inflation Reduction Act (IRA) White Paper - Make it stand out Click on image above to read full white paper. https://www.patientinsightinstitute.org/papersandpublications/healthequitystateanalysis monthly 0.5 2024-09-20 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/16551587-9b4e-4cd7-b70a-d7ec51d5caaa/Intern+Group+Project.png Papers and Publications - Health Equity State Analysis - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/thetippingpoint monthly 0.5 2024-08-22 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/ac5f719d-11f8-4873-a36a-5aaede3e95af/IRA+2025.png Papers and Publications - Medicare Patients’ Financial Burden & the IRA - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/navigating-administrative-tasks-understanding-their-impact-on-patients-and-caregivers monthly 0.5 2024-08-21 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/f0d3c694-7664-408e-8485-ca89e64c8d93/Screenshot+2024-02-21+145626.png Papers and Publications - Navigating Administrative Tasks: Understanding Their Impact on Patients and Caregivers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/sdohscreening2023 monthly 0.5 2023-11-08 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/2e3c4e3a-c01d-4cb3-b2b9-c7532f937fc0/Whitepaper+SDOH+cover.png Papers and Publications - The Patient Perspective: SDOH Screening in Medical Settings - Check out the full Whitepaper Publication HERE https://www.patientinsightinstitute.org/papersandpublications/covid-employment-impact monthly 0.5 2023-10-03 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/d86eafd4-3cf6-4fe1-b291-8a9d626cc8a8/Work+Impact+Data+Brief+Cover.jpg Papers and Publications - COVID-19 & Financial Hardship - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/hear-for-all monthly 0.5 2023-04-18 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/1657590939049-OMGUPP8UID1AX60CYD8V/2022-07-11+20_53_25-Listening+Session+Report_PAF.pdf+-+Nitro+Pro.png Papers and Publications - Hear for All - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/covid-longitudinal-survey monthly 0.5 2022-12-01 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/1650379541756-8EMZXJF6EMK2PGX3KA5B/2022-04-19+09_45_08-COVID+Longitudinal+Survey+Methods+Paper+%283658898%29.png Papers and Publications - Capturing the Patient Experience During the COVID-19 Pandemic - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/blog-post-title-four-ge89r monthly 0.5 2023-04-18 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/1650380798885-R20AL2HDTQKIUEYMACHK/2022-04-19+10_06_17-Research+Experience+Survey_+Results+Summary+%283373668%29.png Papers and Publications - Research Experience Survey: Results Summary - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/blog-post-title-two-tjgjd monthly 0.5 2023-04-26 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/1650381444304-280YN36BAQGNNAJNH4DS/2022-04-19+10_17_05-Research+%26+Evaluation+Data+Corner+-+Patient+Advocate+Foundation.png Papers and Publications - Health Services Research Offerings - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.patientinsightinstitute.org/papersandpublications/tag/Healthy+People%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Research++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/2021++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/intern%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Qualitative+%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Administrative%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Communication+%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Data+Brief%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Cost+of+Care++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Infographic++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Needs+Navigation%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Engagement++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Treatment+Outcomes%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/2025 monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Survey++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/2024%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/trust%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/SDOH+%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/navigation+services%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/2023+%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Brief%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/2020++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Listening+Sessions+%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/AI%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Medicare%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/2022++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/COVID-19++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Cancer%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Results++%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Health+Equity+%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Payors%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/IRA%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/NPAF%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/2025%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/White+Paper monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/Patient+Preferences%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/serious+illness%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/papersandpublications/tag/social+needs%E2%97%8F monthly 0.5 https://www.patientinsightinstitute.org/piiblog daily 0.75 2026-04-03 https://www.patientinsightinstitute.org/piiblog/two-ways-the-amcp-research-institute-is-making-health-research-more-patient-centered monthly 0.5 2026-04-03 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/f6e372f0-6184-4737-b3d7-3efa707ba8a8/PIC_42.jpg Patient Insight Institute Blog - Two ways the AMCP Research Institute is making health research more patient-centered Cate Lockhart, PharmD, PhD Chief Science Officer, AMCP Executive Director, BBCIC April 3, 2026 https://www.patientinsightinstitute.org/piiblog/jens-blog monthly 0.5 2026-03-06 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/4859e47f-da8e-4fb8-a8af-e0417a522661/JenBarth_BrynMawr.jpg Patient Insight Institute Blog - Connecting the Dots: Stepping off the Sidelines into Advocacy - Jen Barth, PIC Attendee and NPAF Volunteer Jen Barth PIC Attendee and NPAF Volunteer https://www.patientinsightinstitute.org/piiblog/h78036f06z01b51ivz03mxv169jcu7 monthly 0.5 2026-02-06 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/7dc88795-b34f-4748-86f6-65c6f7418f05/food-pantries-shelves.jpg Patient Insight Institute Blog - Advocating for Food Insecure Families with Food Allergies in Rural Mississippi Natalie Minton, PhD Student and Research Assistant, Department of Pharmacy Administration, The University of Mississippi Sophie Hathaway, Director of Community Engagement and Outreach, Community Foundation of Northwest Mississippi February 6, 2026 https://www.patientinsightinstitute.org/piiblog/we-take-the-load-a-conversation-with-ebonie-trice-on-dignity-navigation-and-systemic-gapsnbsp monthly 0.5 2026-01-13 https://www.patientinsightinstitute.org/piiblog/cancer-survivor-advocacy-insights-zacs-journey-and-the-power-of-patient-voice monthly 0.5 2026-01-13 https://www.patientinsightinstitute.org/piiblog/exe monthly 0.5 2026-01-13 https://www.patientinsightinstitute.org/piiblog/financialnavigationpoqc monthly 0.5 2025-09-08 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/631a2cdf-0ab3-487e-8df2-066e20306871/Finnav.jpg Patient Insight Institute Blog - Financial Navigation: The Missing Piece in Cancer Care - Make it stand out POQC Financial Navigation Workgroup From left: Mike Harrison, Tammy Cedo, Joan Gargaro, Tracey Cargill-Smith September 8, 2025 https://www.patientinsightinstitute.org/piiblog/yasmeenas-blog monthly 0.5 2025-07-29 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/87cd1c84-9110-4bfb-bd6b-ff4432062437/Intern+Blog+Post+Pics+%281%29.png Patient Insight Institute Blog - My path to Patient Insight Institute - Yasmeena Jones, PII Intern is a recent graduate of the University of Michigan where she studied Psychology and the Sociology of Health and Medicine July 29, 2025 https://www.patientinsightinstitute.org/piiblog/healthcare-is-more-than-medicine-centering-stories-not-just-symptoms monthly 0.5 2025-07-16 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/cbbd2cbb-79a0-4401-9e2f-119db069585f/Intern+Blog+Post+Pics.jpg Patient Insight Institute Blog - Healthcare Is More Than Medicine: Centering Stories, Not Just Symptoms Linda Fokam, PII Intern is a recent graduate of the University of Maryland, College Park where she studied Public Health and English Literature and Language July 15, 2025 https://www.patientinsightinstitute.org/piiblog/why-i-joined-the-patient-advocate-foundation monthly 0.5 2025-07-01 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/d5d434c0-d510-451b-8d14-70df3eded457/NPAF+intern+Christian+Espinoza+is+a+PhD+candidate+at+Claremont+Graduate+University%2C+studying+Urban+Educational+Leadership.+%281%29.jpg Patient Insight Institute Blog - Why I Joined the Patient Advocate Foundation - Christian Espinoza, NPAF Intern is a PhD candidate at Claremont Graduate University, studying Urban Educational Leadership July 1, 2025 https://www.patientinsightinstitute.org/piiblog/needsnavigationguidingpatients monthly 0.5 2025-04-14 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/0044b7ad-0b64-4f58-84fd-25c60af89858/Needs-Navigation-Road-Map-2-824x618.png Patient Insight Institute Blog - Needs Navigation: Guiding Patients Through the Healthcare Maze - Anita Reynolds, NPAF’s manager of grassroots advocacy and community partnerships, describes the urgency of this moment and what it means for advancing Needs Navigation. April 14, 2025 https://www.patientinsightinstitute.org/piiblog/earlycareerinvestigator3 monthly 0.5 2025-04-03 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/35435f32-1b08-4ed0-8b32-9ef073090e77/Schofield+_+Headshot+2.jpg Patient Insight Institute Blog - Better Communication Means Better Care: Ariadne Labs' Serious Illness Care Program - Catherine Schofield, BS Senior Project Coordinator, Ariadne Labs, Serious Illness Care Program' Brigham and Women’s Hospital & the Harvard T.H. Chan School of Public Health 2024 Early Career Investigator Spotlight November 15, 2024 https://www.patientinsightinstitute.org/piiblog/earlycareerinvestigator2 monthly 0.5 2024-11-15 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/e99d92ab-7dfc-43e9-802b-061e1e6e4f60/20230107_132909150_iOS.jpg Patient Insight Institute Blog - Beyond Survival: Addressing Health Equity and Access for Adolescents and Young Adults in Cancer Care - Rhea Khurana Research Associate — Columbia University Irving Medical Center 2024 Early Career Investigator Spotlight October 1, 2024 https://www.patientinsightinstitute.org/piiblog/earlycareerinvestigator1 monthly 0.5 2024-10-01 https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/438741a5-a884-4170-aa1d-bdb1fbfa54c0/SR+AHIP+pic+copy.png Patient Insight Institute Blog - Ubuntu: I Am Because We Are - Shalini Raichur Senior Policy Analyst for Health Equity — AHIP 2024 Early Career Investigator Spotlight August 30, 2024 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2025-07-10 https://images.squarespace-cdn.com/content/v1/5ce435d6bea1ed00016ba287/1558964652247-5MWXNMFZVOPGE4TY6U2Q/MHeiderich_ReflexionenZwei-05-copy.jpg Featured Insights-MH https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/224978e7-71f4-49d0-8655-7c4ab5bd0b52/Screenshot+2023-10-31+115401a.png Featured Insights-MH Stigmatizing Language in Care and Research October 2023 — Stigmatizing language has the potential to undermine or invalidate a patient’s lived experiences. As a consequence, a patient may develop distrust towards their medical provider and/or feel uncomfortable participating in research. This report explores various terms, focusing in on patients’ feeling of the term “Financial Toxicity.” https://www.patientinsightinstitute.org/featured-insights-1-1 daily 0.75 2025-07-10 https://images.squarespace-cdn.com/content/v1/5ce435d6bea1ed00016ba287/1558964652247-5MWXNMFZVOPGE4TY6U2Q/MHeiderich_ReflexionenZwei-05-copy.jpg Featured Partners-MH https://images.squarespace-cdn.com/content/v1/616da4e0a5a5080a7f683e99/224978e7-71f4-49d0-8655-7c4ab5bd0b52/Screenshot+2023-10-31+115401a.png Featured Partners-MH Stigmatizing Language in Care and Research October 2023 — Stigmatizing language has the potential to undermine or invalidate a patient’s lived experiences. As a consequence, a patient may develop distrust towards their medical provider and/or feel uncomfortable participating in research. 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